Out of ICU

The good news is that we've moved out of ICU into a regular room. Graci's blood pressure and pulse are much better. The echocardiogram was normal (for Grace), so that's a big relief. The bad news is she continues to be extremely lethargic. Her fever has returned so she's back on Tylenol. We can't get her to eat anything, and she's only drinking the smallest amounts of water. She's getting fluid through an IV, but will have to start eating and drinking on her own before they'll discharge her.

Some friends of ours are up here at Primary Children's while their newly adopted 2-year-old is recovering from open heart surgery. This is their 17th child (yes, you read that correctly). Most are adopted, some are biological. I often hear people say, "Nine kids??? How do you do it???" I feel exactly the same way about these sweet people.

While Grace and I are up here, life continues to move on. Baseball practices, Providence Hall fine arts night, meetings with contractors, subcontractors, landscape designers and more are keeping Christi busy and me on the phone. The secret is to enjoy the journey. The Lord knew that I needed lots of practice on this one, so he's given me lots and lots of experiences to enjoy!

Jeremy

Graci Update 2

Another quick update:  Grace has slept all morning. (Wish Jer and I could say that!)  Blood pressure continues to be low but the doctors are more concerned now about her heart rate which has been having a very wide range.  They are trying to get that to stabilize.  An ECHO has been ordered and it will be done right in her PICU room.  Fever is still down.

Thank you so much for all of the prayers and texts.  We know that Heavenly Father is watching over her.  I just want to fast forward til she's home with us and being her usual fabulous self.  (:

--Christianne

Graci Update

Graci is doing better! Her blood pressure is still pretty low, so she is still in the PICU, but the fever has been controlled all night. While she was still at Riverton, they tested for both bacterial infections and viruses. During the night we got the virus results back and it turns out Graci has influenza B. This likely explains all of her symptoms, but they may still do an echocardiogram to rule out any problems or infections around her heart. If she continues to be stable but with the low blood pressure they will likely move her out of ICU into a regular room.

I'll update as soon as I know anything more.

Jeremy

Poor Graci part 2

It's 1:15 a.m.  I just arrived home from the hospital and I'm a little wired right now so I thought I'd give a quick update on Grace.  Jer had it mostly right (we'll forgive him for minor details being as how he learned everything through texts.)  Grace had been sick, as he said, but actually woke up this morning feeling better and went to school.  Just after school let out, I got a phone call from a teacher there saying that she was worried about Graci-- she had her head on a desk and wasn't acting like herself.  I went in the school to pick her up and she was in tears, saying that she was dizzy and didn't feel well.  She could barely walk out to the car.  I got her an appt for an hour later and by the time we got to the doctor, her fever was 103.8.  It wasn't the fever that concerned me so much as how she was acting-- very delirious and unwilling to sit up straight or move.  Strep test was negative and the dr. did a chest x-ray that showed some possible signs of pneumonia.  He was also worried about the way she was acting and her low blood pressure and sent us to the ER.  By the time we got to the ER, Graci was very delirious.  She would go from being in a total daze to lashing out-- which she has NEVER done.  The doctor that treated her there was fantastic and thorough.  He first thought that she was likely septic and possibly had meningitis.  Sadly, Graci's scar tissue from her back surgery made it difficult for them to get any spinal fluid.  They put the needle in three times and couldn't get it.  She was hysterical during that time, screaming in the most pathetically soft voice, "Please stop hurting me!"  It was awful-- especially when it didn't even work.  They started IV fluids and antibiotics and waited for her lab work.  The strange part is that all of her labs were normal.  As her doctor said, "She has everyone baffled."  By 10:00 tonight they finally got her fever down.  While that was of course, good, her other stats started going down too-- her oxygenation and blood pressure.  The doctor had talked throughout the night about possibly transferring her up to Primary Children's in Salt Lake, but hadn't felt an urgency yet.  Apparently her drop in blood pressure did the trick.  They are concerned that she might have endocarditis.  As the doctors here spoke to the doctors there, it was decided that she needed to go on life flight straight to the PICU.  That way, she would be attended by pediatric ICU nurses rather than EMTs on the way up there.   About 15 minutes before she took off on the helicopter, Graci started to come around.  She was talking a little and looking so much better.  She even gave a big goofy grin as I took her picture getting onto the helicopter.  I'll post that later if she's ok with it.  Made me feel so much better to send her off when she was able to do that!  The flight from our hospital to PC is just 7-8 minutes and Jeremy was there waiting for her.  I came home to take care of the 8 cute kids I left here alone all night!  I was so grateful that I had Papa Murphy's pizzas in the fridge-- Taylor was able to cook dinner for everyone and put them all to bed.  Parker cleaned up the kitchen.  What wonderful kids I have.   I wish that Jer and I could both be with Graci, but I am grateful that I have an actual bed to sleep in for a few hours (there are no beds in the PICU and all of the "guest beds" have been taken tonight.)  Now if I can get my mind off of Graci and get some sleep so I can conquer tomorrow!  That girl sure knows how to worry us!  It was such a blessing that I was able to see her smile and respond before I had to say goodbye for the night.  Thanks in advance for prayers her way.  

--Christianne

Poor Graci

Our sweet Grace has had it rough lately! Sunday she came home early from church because she wasn't feeling well. She has slept most of the time since then. She had a fever around 100 so we gave her ibuprofen. She has missed school all week. Then this afternoon, she had a 103 fever, so Christi took her to our family doctor. Not only did she have the high fever, her blood pressure was extremely low. The top number was about 70. The doctor sent them over to the emergency room at Riverton Hospital.

At the emergency room they were worried about meningitis, so they tried to give her a lumbar tap, which was extremely painful and unsuccessful. They are not sure yet, but Grace will likely end up riding in an ambulance up to Primary Children's Hospital in Salt Lake tonight. Second ambulance ride in a month for the poor thing! (Feeling very grateful for good insurance right about now.) And of course I'm on a business trip in Denver until tomorrow. Fortunately there was a late flight available, so I'll be able to get home tonight.

Pray for Grace, poor kid. She's been through so much.

We love you Graci!

Daddy

Like Kids in a Candy Shop :)

One of the most difficult features of our current home is our kitchen. The narrowest spot is so tight that opening the refrigerator (and this is a center open fridge) completely blocks the passage between the kitchen and the dining area. The floor space in the kitchen is way too small to accommodate even half of us as we try to clean the dinner dishes, so each night one big kid, one medium kid (Jess or Xander) and one parent is assigned to KP. And as you know from our Dynamite video, we don't fit very well around our table, although this situation is vastly improved since a kind neighbor gave us a beautiful Pottery Barn table with benches instead of chairs.

So you can imagine how Christi's eyes lit up today when we went in to pick out our cabinets. She walked up to one of their display kitchens and went into a sort of stupor...glazed eyes, goofy grin on her face, tongue lolling slightly out of the corner of her mouth. The beautiful, three-and-one-half-foot deep island counter top kept her transfixed. The four-foot-wide walkway between the island and the wall counters had her mesmerized. It was all we could do to get her to come over to the desk and decide on specific layouts, woods and colors for the cabinets throughout our home. I must admit it was REALLY fun. I'm so excited for all of you to come see it!!!

And sweetheart, admit it. In spite of how worried you were, I really was easy to work with. Right? I mean, I was, wasn't I?

Jer

The foundation is in!

I seriously have to keep pinching myself.  What wasn't even a consideration a year ago has gone from seeming impossible to improbable to unlikely to impossible to maybe to no-way-on-earth to this-might-really-happen to Holy-Cow-There's-A-Massive-Hole-In-The-Ground!!!  Last Wednesday they began excavation.  Footers were laid on Thursday.  Today they poured the foundation.  I really can't express how unbelievable this entire project is.  We are SOOO grateful and excited and bouncing off the walls around here.  We go visit the property multiple times a day.  I really can't tell you all what this means to our family!

Thank you for all you have done!

-Jeremy

They had to perform a water-pressure test at the nearest fire hydrant...

And so it begins!

I'm a construction novice, so this seemed like the coolest thing ever!

Pictures

This is a repeat of a post from January.  This particular post was getting so many anonymous "check out my blog" comments that we deleted the original and reposted it here:)


First of all, I want to say that I had a very good reason for not writing last night.  I'll leave it at that!  But because I promised 50 posts in 50 days, I plan on doubling up one day--- sound ok?  (:

I've realized that we never did post the rest of our pictures from China.  As you may recall, we had a lousy internet connection there and had a super difficult time posting pictures.  So... this is a catch-up post to satisfy the grandmas' desires to see more China pics!

Us with Graci's "China Mama" and "China Baba" (foster parents for four years-- we LOVE them!)

Jesi holding Ling Long (Graci's "neice")  Notice the spread on the table-- this wasn't the kitchen table, just the table in the living room.  It was ALWAYS filled with all kinds of food that they were constantly offering us.  Such AMAZING hostesses!

China Mama and Baba and aunt and uncle-- taken in the aunt and uncle's home

Jesi and Ling Long-- they referred to Jes as Ling Long's "Auntie Jessica" (;  and as you may recall, they refer to us as Ling Long's "America Grandma and Grandpa"  Ha!  I didn't think I would be ready to be called "Grandma," but honestly, I loved it!  It was so much fun to hold her and realize that many of our own grandchildren could look so much like her!

Jesi was seriously like a rock star at Graci's former school.  The kids would touch her hand and then sway dramatically as if they had just touched the hand of Taylor Swift.  As you can imagine, Jesi ate it up.

"China Brother" holding Grace and Bei Bei (Graci's friend)

At a zoo in Hangzhou-- they don't exactly have the same safety precautions there as in America.

Feeding carrots to the bears!

One of my all-time favorite pics of one of my all-time favorite people-- Graci's "China Grandma"

Saying goodbye at the airport is always so hard, especially for China Mama.

Our "guide" turned friend, Sara, is on the left.  We LOVE her, and she has become part of Graci's China family since our initial adoption trip to get Graci.  They have taken her in as one of their own--  she was even there for the birth of Ling Long.

Gotcha Day-- taken moments after seeing Cali for the first time.  Such a beautiful moment.

Taken right after Cali was saying her goodbyes to her house mama, top left.  Lots of tears.  Such a brave little girl.  It broke my heart to watch her sadness-- I can hardly bear to look at the picture even now.

Taken the day after Gotcha Day, when we returned to the Civil Affairs office to make it all official!

Cali signing the papers saying she wished to join our family.  I believe Jeremy blogged about how special this was to watch...

Beautiful handwriting!

Ok, I just LOVED this family!  They were from Spain and they were seriously one of the cutest couples I have ever met!  This is their second day being parents-- beautiful!

We were given this gift of calligraphy by one of the officials to celebrate the finalization

Meeting Cali's biological relatives.  Above right is her grandmother.  Between Jeremy and myself is her auntie, and the man is the auntie's husband (whom she doesn't really refer to as "uncle")

Cali and auntie

Cali and granma

Saying goodbye.  I am happy to say that it wasn't really hard for Cali-- as Duna (far right) said, she was already much more comfortable and happy with our family at that point.  We were so grateful for the opportunity to meet them, but Cali isn't really interested in keeping up a strong relationship at this point, which of course, we honor.

Xi'an smog-- ugh! 

Cali's scarf was given to her as a going away gift from her house mama, and she wore it all the time.  (:

Ok, this doesn't even begin to do it justice, but this is a pic of the Terracotta Warriors.  One of the most amazing things I have ever experienced.  This is just one building out of three.

The girls (especially Cali) thought it was extremely funny to have me be their "dog."  The lady in the pink coat was our guide.

It was soooo cold and we had been walking a long time.  Cali was so sweet to offer to let Jesi ride with her.

Out of the cold into beautiful Guangzhou

Pedal boats

 

We always get such a kick out of the English translations on signs!

Signing out!