Tuesday, October 21, 2008

Wonderful friends

Thank-you, everyone, for your wonderful comments on the blog. They mean so much to us-- and we are so grateful for your kind words. I love getting comments from strangers and those who have followed our adoption stories. I have also received comments from a few old friends-- Kelli and others-- that have private blogs. I would LOVE to get in touch with you and follow your blogs, so please send me an invite at christi405@yahoo.com

Also, Marcy, if you are reading this-- I would love to get in touch with you and find out more about your sweet little girl-- please e-mail me!

Heart Surgery Buddies


I am just realizing that I have not updated on Graci's progress. She is doing SO SO WELL!!! She has been off of oxygen for two weeks now, and is back in school. You would NEVER guess that she just had heart surgery-- it's been such a miracle. She was able to go with us up to Oregon to Jeremy's brother's wedding-- and danced as much as anyone at the reception! (Jenny, I would love if you would e-mail me wedding pics so I can post them!) We are so so grateful for everyone's prayers and never dreamed this all would have gone so smoothly.

Now, may I ask anyone who feels so inclined to include my dad in their prayers this week. He following in Graci's footsteps and having open heart surgery tomorrow. He is such an amazing dad, husband, and grandpa-- and we are sure that our Heavenly Father knows that we need him for many more years to come!!!!!

Keltson Blackburn



Taylor has been blessed this year with a wonderful primary teacher. Keltson genuinely loved the kids he taught, and was a fabulous teacher and example. Keltson just received a mission call to serve the Lord for two years in North Carolina, and was getting ready to leave on his mission next month. On October 11, he overcorrected while driving, rolled his car, and was killed. It has been terribly hard on our church ward and neighborhood. Keltson lived just a few doors down from us, and we have so loved him and his family. We were so sad to have to tell Taylor and the other kids. He was very sad, and chose to delay his very anticipated vacation with Daddy to go to Keltson's viewing and funeral. He and his primary class sang "Called to Serve" at the funeral, and we know that Keltson loved it and that his spirit lives on. Thank-you, Keltson, for the wonderful example you set for Taylor and our family.

Don't cry over spilled milk?

Last night, as I was getting kids ready for bed, I heard a thud in the kitchen, followed by a, "Um, Dad-- I need help!" Taylor had gotten a brand new gallon of milk out of the fridge and accidentally dropped it. It busted open and resulted in a HUGE puddle of milk all over the kitchen. It took me quite awhile and several towels to mop it all up-- and being overwhelmed, I tried to ignore the fact that I was sure a significant quantity of milk had gotten under the refrigerator. Well, this morning we woke up to a horrible smell in the kitchen/living room area. I was trying to think of what it could be, when Taylor said, "I know JUST what it is! It smells exactly like the time the milk spilled in the van-- I just know it's rotten milk!" I thought it was funny that he remembered that smell so well (it was AWFUL) even though it happened a couple of years ago. So, as soon as I got the kids off to school, I pulled the fridge out. YUCK!!! It was so gross under there-- and took quite awhile to scrub the dried milk and nastiness that had been under the fridge. I did realize, however, that the smell was not coming from that-- but from the towels I had left in the sink the night before-- oops. Still, it was good to clean under the fridge, and I decided to clean the rest of the kitchen floor while I was at it. After I was done, I left the fridge out in the middle of the kitchen so the floor could dry, and went into my bedroom. A few minutes later I heard the sound of water spraying. I thought Jessica must be washing her hands and ignored it, but after a few minutes I got to thinking how LOUD the sound was. I went into the living room and saw Jessica sitting there coloring-- and followed the sound to the kitchen where I found water spraying like crazy from the wall where the fridge had been. Apparently, when I moved the fridge out, I had pulled out a tube that had been connected from the wall to fridge. Water was EVERYWHERE!! We are talking about a FLOOD!!! And to top it off, cupboards had been opened, so we also had flooded cupboards. So now I have cleaned the kitchen floor for the third time in less than 12 hours (after the spilled milk, the dried milk, and now the flood). Sadly, I have little to show for any of this-- the kitchen looks exactly the same way it did last night as we were going to bed. The joys of motherhood.

Thursday, October 2, 2008

First "I Love You"


Until very recently, Elli would never use words to communicate. She would copy words, even phrases, that we said, but would never use them on her own. Unless you are a mother who has with a child like this, I think it would be hard to grasp the emotions that go with having a child who cannot see and cannot talk. It is humbling and heartwrenching-- wanting so much to get inside their little heads and know what they are thinking. Wanting to turn the light on for them-- not even just physically, but cognitively. Wanting the world for them when they can't even tell you they are hungry or thirsty. Well, the past few weeks have brought some major breakthroughs for her-- she has spontaneously said a few things-- like "night night" when her head hit the pillow, "downstairs" as we start walking down the stairs, and of course her daily "OATMEAL!" when I first walk in her room in the morning. These few words have been AMAZING to us-- true miracles. We are so excited that she is learning that words have meaning and that she can use them to communicate. It is pure joy to hear her talk.

Today the absolute sweetest thing in the world happened. I had just picked the kids up from school and driven them home. Parker, who has always loved Elli in a very special and perfect way, was hugging and talking to her as she was waiting for me to get her out of the carseat. I came to the side of the van and said, "Oh, Elli-- did you miss your Parker?" She giggled as he hugged her and then said, clear as a bell, "I love you."

I couldn't believe it. Parker about flipped out with joy. I was so glad that there were two of us there to witness that she really did say it! I thought it very fitting that her first "I love you" was to the best example of unconditional love toward her that I know. Parker plays and loves on Elli in a way that is sweet beyond description. I will never forget the words he said to me just a few days after Elli was brought home from China: "Mom, if you could catch blindness, I would still want Elli." Pure love.


Another sweet thing happened with Elli on Sunday. It was the annual primary program at church. This is where, following the Sacrament, the children of the congregation put on the rest of the program. It is always a beautiful program with music and sweet testimony. This year's theme was "I Am a Child of God." The program began with 6 children standing up one by one and saying "I am a child of God." After the third child, Elli's voice spontaneously rang out with a very loud "I am a child of God!" It wasn't spoken perfectly, but everyone heard it and understood her and it brought many tears to the congregation. The children then sang, "I Am a Child of God," with the first verse in English, the second in Spanish, and the third in Mandarin. Our family was asked to sing the third chorus by ourselves. It was so neat to be able to stand there with our children, singing in the first language of Elli and Graci. Jessica held a picture of Graci since she wasn't able to be there (due to the heart surgery). Such a special day.

Yes, Elli, you are a child of God. And if He had favorites, you would be one of them!

By the way, the first time I heard this song playing, my heart nearly burst for the beautiful message in it's first phrase. I know it is true!!!

Sunday, September 28, 2008

My surety with God

Well, I wasn't really going to journal about Emily-- because the emotions are still so personal and even if I wanted to share them, I really don't have the words. But I've been looking at her slideshow over and over, reminiscing about the days surrounding her birth and I thought it may be therapeutic to write down just a couple of the sweet experiences I was given during such a hard time.

I found out that Emily had passed away just a couple of weeks after finding out we were having a girl. I had been on blood thinner (after Jacob's birth/death we found out I had a blood clotting disorder) and so the doctors wanted me to wait 48 hours before delivering her so I could get the blood thinner out of my system. So for two days, I knew she wasn't alive-- but was sent home without delivering her. Those two days were, in a word, a nightmare. I was completely dysfunctional and my house completely fell apart. I had just gotten a large box of maternity clothes from my sister and that first night I threw the clothes, one by one, around the room in a mad rage. I didn't pick up one toy or one diaper or one dish or do ANYTHING besides try to make arrangements for her casket, dress, etc. Needless to say, my house (which wasn't clean to begin with) looked like it had been hit with a tornado.

When I was in the hospital, a dear friend came and borrowed a key from Jeremy. I guess a phone call from one church friend to another quickly spread, and when she arrived at our home with the key, mini-vans were lined up around the block to my home. It was lovingly dubbed "The Mormon Minivan Brigade." My house was not only cleaned and organized top to bottom, but all my laundry (we're talking LOADS) was done and the kitchen stocked. I was at first hugely embarrassed, but soon realized what an AMAZING blessing had been given to me. A friend kept the kids the first night we came home from the hospital, and instead of spending time trying to get my house in some kind of order after just giving birth, I was able to sit down with Jeremy in my beautiful home and BREATHE. We spent the night eating a wonderful dinner, looking through scrapbooks, listening to uplifting music-- and before the night was over I felt so much peace. So THAT was a beautiful, tender mercy of the Lord. Thank-you, my dear Tennessee friends.

The morning I went to deliver Emily I went into a total panic because I couldn't find our camera. I knew from Jacob how precious pictures would become and became nearly hysterical when it was time to leave and I still couldn't find it. Jeremy ended up going next door and borrowing the neighbor's. We took at least 50 pictures of her at the hospital, and more later at the funeral home when we let Taylor and Parker hold her. I needed to develop the pictures quickly so I could return the camera, so I went to Walmart's one hour photo. As I pulled into the parking lot to pick them up, I starting having a panic attack. I seriously felt like I couldn't breathe. Up to this point I hadn't really talked to anyone-- I was staying holed up in my room-- and was just a mess around people. I was so worried that I would go up to the counter and some young teenager would pull my photos out of the envelope for all to see and I would have to actually have to have a conversation about the pics and try to explain it and I was just PANICKED. Those pictures were, and still are, so precious and sacred to me and I didn't want just anyone to see them. I seriously felt like I would die if I had to look at them with other people around. Well, I tried to control my hysteria and finally made my way to the back of the store. There was a HUGE line. They were totally busy. PANIC!!! How was I not going to have a complete meltdown in the store? I said a little prayer in my heart and just cringed as I watched the person behind the counter pull out and flip through the pictures of everyone in front of me (making sure they were the right pics and they were happy with them). I finally reached the counter and gave her my slip.

She pulled out a big fat envelope with a sticker on it that said $0.00 and handed it over to me without opening it. She said, "It looks like there's no charge on these. Please have a good day."

I was able to walk out of the store without saying a word.

Whoever had decided not to charge me for the pictures, also printed doubles and THREE digital CDs.

A tender mercy.

I felt loved.

I knew then, beyond a doubt, that my Father in Heaven was aware of my every need. That He knew me and was holding me and was hurting for me. It was the simplest gesture-- worth just a few dollars, but it has never left me. It has made me wonder how often we are the hands of the Lord. How often does He work through us to accomplish His great purposes. I have often thought about that compassionate person in the store who didn't charge me for my pictures. So grateful he or she did what the Savior would do if He were here.

Am I still enough to hear His promptings? Am I in tune enough to help Him answer the prayers of others?

A lot to think about. I am so so thankful for my darling Emily Anne and the lessons that I have learned through her short little life. These are just two of the sweet experiences I have had because of her. She has impacted my life in a profound way. I will absolutely never be the same because of her, and I am so humbled to have her in my life. Thank-you Emily, for all you have given me. You and Jacob have done a tremendous work here on this earth. Thank-you for leading us to China, and for lighting the way home to heaven. You are my surety with God-- there is nothing I wouldn't do to be worthy to live with you again. I love you.


P.S. Graci is doing FABULOUS! (:

Happy Birthday, Emily Anne

Stillborn--
Born, still in the arms of God.
Born, still in the knowledge
Of His grace, and of His love.
Born, still to us
But alive to God!

Friday, September 26, 2008

Modern day miracle

Just a quick note to say GRACI IS HOME!!! Can you even believe it? We are still a little shocked at how short her hospital stay was-- AMAZING. She is on a liter of oxygen (full time) and can't really be around anyone for awhile, but she looks GREAT and we are so happy to have her home. (:(:(:(: I know that this is due in large part to all of your prayers, so once again, a very heartfelt thank-you and we love you!!!!!!!!!!!!! I'll try to post some pics tomorrow-- you won't believe how good she looks!

Thursday, September 25, 2008

Random thoughts about my day that you really just don't need to know...

Graci is statting better, but they are still doing some additional testing in the morning to see if they can find out what was happening with her oxygen levels. Before the whole deal with the stats, we were told we would probably be going home tomorrow (can you believe that?)!!! After being told 2-4 weeks in the hospital, this is VERY GOOD NEWS!! So as long as they don't find anything too wrong tomorrow, we may be heading home. (:

My mom brought the kids up to visit Graci today. She was SO happy to see them, but not as happy as me!! I swear Jessica grew up a ton since Monday morning! She is so dang cute!! And the boys were so so sweet and lovey. Elli is still like oxygen to me-- I don't know how I survived without her these past few days. Her monkey screeches and cuddles just make my day.

We took the kids to the play zone here and they had a great time. There was a music class going on, and it was SO much fun. They had all kinds of interesting instruments for the kids to play with. Jessica was SO animated, and several times Elli just burst into giggles because she was so happy. They both love music. The boys were in heaven because they had a play station (we're probably the only family in the world that doesn't have one in some form or another).

After the kids left, Graci wanted to go back to the playroom. We did some crafts and I was actually enjoying myself until she asked me to play dollhouse with her. I'm just going to admit it-- I HATE to play dolls. Make-believe is just not my thing. I remember going over to Cindy Duncan's house growing up and pulling out the barbies. She had the most amazing imagination and I always felt rather stupid trying to create scenarios for the barbies. I like to dress them, but when it comes to the real make-believe part-- it's just not my thing.

Tonight I decided to give it a try-- for Graci's sake. You would think that being a former first-grade and preschool teacher I could conjure up some kind of make-believe storyline for the little dolls, but no. Graci kept looking at me to take the lead, "Come on, Mom, play dolls with me!" I fumbled my way through a pathetic story of mom and dad going out on a date and leaving the little kids with their grandparents. The grandma made donuts with the kids. The boy jumped on the couch. Grandpa told him to get down. The end. This got me through a whole 2 minutes with the dollhouse. Not going well. So I decided to take a new approach. "Let's rearrange the furniture, Graci." "I don't want to." "Oh, yes you do-- (as I'm dumping out every piece of furniture) it will be fun!" Rearranging furniture is something I can do. No imagination required. Luckily, by the time we got done with this, the playroom was closing. Phew. Are there any other moms out there that would choose to clean toilets rather than play dolls, or am I alone in my
make-belive woes?

After the playroom we went and got some dessert to watch a movie with. Graci chose a rainbow sprinkled cupcake, and I that fabulous mousse pie I have already raved about. Yes, I've probably averaged one slice of that heavenly chocolate every day since I came to the hospital. Graci, on the other hand, got settled into her bed and said, "I think I want to eat grapes for my dessert instead of the cupcake." This, friends, is why Graci can eat bacon for every meal-- and why my hips are no longer fitting into my jeans. I inhaled my pie while Graci delicately ate her grapes as we watched "My Little Pony." I was actually proud of myself for not eating that frosting-laden cupcake too-- is that pathetic or what?!

As we were settling down for bed, some elders from our church came around to visit with us and see if there was anything we needed. One was Polynesian and was wearing what my aunt Debbi has now told me is a "lava lava." It wraps around your waist like a skirt and looks so great with a shirt and tie. Debbi said that if you serve a mission in Samoa or Tonga, you don't have to bring a suit-- just white shirts, ties, and sandals to wear with your lava lava. Sounds comfy, huh? Anyway, Graci kept asking him, "Why you look like girl?" She was very troubled by the lava lava until he told her he was adopted too. That won her over. He also did magic tricks that had her bedazzled. The other elder brought up the fact that they attend the University of Utah. I told them they were no longer welcome in our room, and so began the battle of which team was better (BYU or the U). I handed him a box of tissues and told him to save it for the big game. This was mostly going on between me and the non-polynesian guy, who after five minutes or so decided to tell me that the polynesian elder actually PLAYS football for the U. Oops!!

I really liked Graci's nurse today. By the end of the day I felt like we were friends-- and she'll be here tomorrow, so I'm glad. We got talking about families, and how ours was big. Sometimes I have this complex about having so many kids. I remember looking at big families when I had maybe one or two kids and thinking, "how in the world can they possibly give enough attention to everyone?" Lately, it's really been hitting me that WE are one of those famlies! We're so, well-- BIG! Like the other night when I grabbed a box of granola bars to eat on our way to family pictures. I began passing them out and was literally shocked to realize that there weren't enough for all of us. We have more people in our family than granola bars in a standard box-- CRAZY. How did that happen?!!!! Seriously!!!! Or in the morning, when I'm making lunches and go through a WHOLE lOAF OF BREAD!!! What is that about?!!! I run the dishwasher twice a day, NEVER get on top of the laundry, have like a thousand toys floating around-- it's just nuts. And it's not really those things that get to me-- it's tucking one of them in at night and realizing I didn't read to him that day, or saying no to playing a game because I am doing homework with someone else.

As if to emphasize the point, a friend of mine recently told me that she knew she was DONE after two children. Why? Because she was one of five and said she never really felt like she had enough attention. That REALLY threw me for a loop.

So, back to the nurse-- it was very refreshing to hear she was from a family of NINE children and absolutely LOVED it!!! She said neither she or her siblings would change a thing. My friend, Heather, one of eight, just told me the same thing. I think I really need to hear those things right now!! Because I guess what it comes down to is that we KNOW each of these children are meant to be in our family. So really, it's got to work, right? Even though I cannot possibly give each of them the same one-on-one as I would if they were an only child, it can work. They can feel completely loved and completely, well-- complete, if we're willing to put forth the effort, right? Come on, folks-- I need some reassurance on this!

I'm probably feeling this way right now because I've been here at the hospital all week, leaving four of them at home. And I'm missing Jeremy terribly. Which is also probably the reason that I'm so long-winded in this entry. I need an adult to talk to. I love little Miss Graci Kate, and love one-on-one time with her, but I'm one of those parents that after kids get tucked in REALLY need some good adult conversation. So, thanks for listening to me ramble! Sorry this was so long-- I am now turning in!!

--Christianne
mother of MANY!!!!

Some concerns with stats...

Good morning! Graci had a good night, but this morning her oxygenation (sp?) stats were very low. They've had lots of nurses and technicians in here trying to figure out what's going on. They finally sent her down for a second x-ray, and we're waiting for results on that. Currently, the stats are back up again, but with higher oxygen than previously needed. So, we're interested to see what's going on... Her surgeon just now went to examine the x-rays.

I had a fun night last night-- I was on a friend's blog, and started linking to other blogs until I came across two of my dear high school friends! It was so much fun to see pics and read about their families. It's quite bizarre to realize how long it has been since I've seen them-- they are the kind of friends that you feel like you could start on right where you left off. By the way, Tiffany and Jessica, if you are reading this-- I would love to have your e-mails. Mine is christi405@yahoo.com

Also, I neglected to give a "Happy Birthday" to Jen and Mariah-- their birthdays are the same day as Jeremy's. Hope you had a great day!!!!!

Wednesday, September 24, 2008

Can you believe it?!!!

Our Graci Kate is out of the ICU!!!! It is so amazing how well everything has gone--we really never imagined it would go this smoothly! Graci is now in her own room in the Children's Surgical Unit. She's been watching movies and even making little crafts. This morning they did the cutest thing. All the kids in the hospital that were able to play BINGO from their own rooms. They had passed the most darling BINGO cards around, then had everyone turn on their TVs. They broadcasted a man reading the BINGO cards from the playroom in the hospital. When you got a "BINGO", you would call him on your phone and he would announce it on the air. So cute. Then they came to the rooms and passed out prizes (stuffed animals) to everyone that played. This is such a wonderful hospital. They've also brought all kinds of crafty things around for her to do-- fun, fun.

Tonight Graci wanted to get out of bed and go on a little walk-- YAY! She did great for a little while, then needed a wheelchair. She was so happy to get out of bed, but it really exhausted her. I took her to the bathroom afterward and she was falling asleep on the toilet. (: She's now sound asleep-- I'm thinking for the night.

The one bad thing about the day is that Graci's been coughing. It REALLY hurts her to cough, and she sounds awful. This is pretty normal after a surgery like this-- it happened last time-- but there is a concern that she'll develop pneumonia. So, the nurses are constantly trying to get her to cough it out-- which she hates-- and so she's been in a bit of a foul mood because of that. We have heard that coughing after heart surgery feels like a semi-truck rolling over your chest-- fun.

We've always joked that Graci wouldn't make a good vegetarian. I asked her what she wanted me to order her for dinner tonight and she said bacon, jerky, and chicken nuggets. Hmmm.... This is after requesting bacon for breakfast and lunch. I told her she could pick two meats and then she had to pick something healthy that wasn't meat. She asked if hash browns were meat. (: We settled on the hashbrowns (though I wouldn't put them in the healthy category), bacon, jerky, and lots of yummy fruit. Luckily, she's saving the jerky for tomorrow.

I am REALLY REALLY missing my other sweet kids!!!! Jeremy has been going back and forth-- he's still somewhat under the weather and doesn't want to be here too much. But tomorrow, the plan is to bring them all up here to the hospital to visit Graci and I'm soooooooooo excited! (:(:(: It's crazy how much you can miss your kids in three days. It's also crazy how sometimes after three minutes you can wish you had some alone time again. (:

It has been really fun when Jeremy is here with me-- we get to go down to the cafteria and eat together-- just the two of us-- and also have time to visit and hang out. So as much as it is stressful here, it's also had some very peaceful times too.

Well, I'm going to try to get some sleep. The nurse will be in and out of our room throughout the night to check stats and give meds, then Graci has an x-ray at 6 a.m.
Not exactly a perfect night's sleep, but possibly better than what I'd get at home!

--Christianne

Such Great Progress!!!

Wow! Graci has all of her tubes out! This is very significant progress, even quicker than last surgery. The only things she's attached to right now are one IV line and the oxygen into her nose. Christi and I were at breakfast when they took her tubes out, so we missed the fireworks, but I caught the tail-end of her crying when I came back. She was pretty animated. She's doing prety well right now. She's fairly drugged up, both morphine and lortab, so she's mellow and sleepy. The narcotics are also making her itchy all over. They anticipate that they'll move her out of ICU late this afternoon. Graci's excited to move upstairs because she'll have her own room!

Tuesday, September 23, 2008

Finally -- a drink!

I'm back at the hospital, and Graci looks SO good! She was so excited at 6:00pm when she finally got to take a drink. She's also had a little ice cream:) She's experiencing some pain, but I don't think it's too bad. They're still giving her morphine. It was cute when I came in -- she gave me the biggest smile. She continues to do well and we're hopeful she may be able to leave ICU tomorrow.

Graci's voice is really quite hilarious right now. She sounds like a little mouse or something. It's a higher-than-normal pitch and extremely weak. So her nurse just came in to check on her. Graci had been asleep, but when the nurse started checking the lines on her hand and arm, Graci woke up. Graci started saying, in her pathetic, whiny falsetto, "Owie!, owie!, owie!" The nurse said, "Are you hurting?" And Graci responded with a nonchalant, "Not really." We all cracked up. I guess she was just anticipating pain. What a cutie:)

Jeremy

The vent is out!!!!

Oh, Graci looks so much better!! It is always so good to see someone get their vent out-- she is so much more herself! She was upset after they took it out because she had to sit up a little and it was hurting her, but she soon settled down and is now resting. She'll be able to drink a little in 4-6 hours and that will help her tons.

Our next door neighbor and mother of Graci's best friend is a nurse here once a week. It was her shift today and it was fun to be able to see her and have Graci see a familiar face. We just got done from eating lunch together and it was so good to have some company. Jer's still at home trying to rest up a bit. He's watching Elli so Mom and Dad could go to a doctor's appointment and come visit Graci. I thought that was a pretty crummy birthday-- not feeling well and having a daughter in ICU-- but then I read Leslie's comment about the success of the surgery being the best birthday present ever, and that made me feel better. I love you, hon! Happy Birthday!

--Christianne

The day after...

I am sitting by Graci's bed in the ICU-- I finally got smart and thought of bringing the computer in here so Graci could hear the music from the website. This was a good thing!!! She has finally settled into a restful sleep. The doctors have done their rounds and are wanting to take the vent out today (hooray) but we're not sure when that will happen. ):

Jer, loved your post about Elli in the night-- you got it perfect! Thanks so much for being patient with Jesi. And Mom, thanks for all your help with Elli. I actually got a better night's rest than the both of you!! That's truly something...

I've made friends with the family of the patient next to us-- they are from Rexburg, ID and have the cutest little baby girl in here who just had heart surgery as well. It is heartbreaking to see all the kids in the ICU-- and yet such a miracle when you think of all the technology that makes it possible for them to be here. So many of them wouldn't have survived in any other time than this.

I can't say thanks enough for your thoughts and prayers. Graci is definitely benefitting from them.

Good morning/Tough morning

I just spoke with Christi on the phone. She stayed overnight at the hospital. Fortunately, she was able to get one of the waiting rooms with a bed. She said that overall, Graci is doing well. In fact, they're pretty close to removing her breathing tube. Unfortunately, before they can do that, they have to bring her back pretty close to full consciousness. Up until now, she's been at least somewhat sedated, so she wasn't too aware of the pain, and wasn't too aware of the ventilator. Now, as she's coming out of sedation, she's in tears all of the time. She's feeling the pain in her chest and other areas. Probably most disturbing of all for her is the thirst. With the ventilator in, she can't have anything to drink (and hasn't had anything since midnight on Sunday!) so her throat is miserably dry. The only thing they can do is swab a little bit around her lips with a small, wet sponge. She also wants to be sung to all of the time, so Christi's vocal cords are getting a workout. But at least her progress is good.

I came home last night with an excruciating headache, which I had suffered through for most of the day. As I was able to get away from the stress of the hospital, eat some good food and relax just a bit, I started to feel a little better. I helped get the kids to bed, and got to bed myself by 9:30. I slept solid until 2:00 am, when I heard Jessica crying and starting to open my bedroom door. Then I heard my sweet mother-in-law, LaRita, quickly rush to Jesi's aid so I wouldn't be disturbed. I was just drifting off again when Elli started into her angry cry. Elli wakes up many nights. Some nights, she's just fussy and has a sad cry. Usually in this case, she can be calmed down fairly quickly and will fall back asleep. Not so on the nights she wakes up angry!

You have to experience the angry cry to understand it, but I'll try a little description. She puts every ounce of strength she has into this cry. (And she is a STRONG little girl!) This thing comes straight from the diaphragm and permeates walls, ceilings and other obstacles in it's way. (In other words, on a normal night, when Christi and I are both sleeping at home, if Elli starts into her SAD cry, I can reasonably be a lazy slug and pretend not to hear her while I wait for Christi to get up and help. But on such a night if Elli starts into her ANGRY cry, there's no pretending. I simply admit I'm a lazy slug and let Christi get up and help. Wait, there's not too much difference, is there? Well, I digress:) The angry cry is so piercing that you seriously feel like there is permanent damage being done to your eardrums as you approach her to hold and help her. Usually it takes a minimum of 45 minutes to calm her down. And usually, if she's woken up with her angry cry, she won't fall back asleep that night. What you hope for in this case is that she'll calm down enough that you can leave her in her room and go back to bed. After you get back into bed, you'll start to hear her again, but at this point, she progresses to her euphoric elation stage. She finds humor in something down there in her bedroom. We don't know what it is, but you've never heard laughter quite like this. She gets absolutely hysterical. Again, this strong, loud laugh is pretty permeating, but we've learned to sleep through the sound of that, while sleeping through the angry cry is virtually impossible.

Anyway, both the girls were going strong at 2am this morning. So I got up and helped Jesi while LaRita helped Elli. What really hit me at that point was how blessed I was. Usually, I'm not so great in the middle of the night. I can be a bit grumpy. But what a blessing. On a night when I really needed patience to get through Jesi's refusal to settle down, I was blessed with patience. It was also such a blessing that my headache was gone at that point. I'd had this headache (sometimes stronger, sometimes weaker) for about 48 hours. But when I woke up with Jesi in the middle of the night, it was gone. The tender mercies of the Lord can be so subtle that they're easy to miss. But they are tender mercies, nonetheless.

It took about 25 minutes to get Jesi back to sleep, and LaRita let me go back to bed while she continued to help Elli. (I fell asleep to the sweet sounds of laughter coming up from the basement.) I woke up this morning at 7am feeling much better. Whatever illness I've had seems to have settled in my chest and is localized to a pretty rough cough. But overall, I feel much better. The cough will severely limit my time in the ICU, so hopefully that will go away quickly. The kids (with Grandma and Grandpa's help-Dean went to Wendy's:) brought me breakfast in bed for my birthday. It was sweet that they would remember this little tradition in the midst of such tumultuous times. We have great kids!!!

Thanks for all of your love. It's neat to see how many of you are interested and concerned enough to check in on a regular basis for updates on Graci. We'll keep them coming!

Jeremy

Monday, September 22, 2008

We've seen our Graci!

Hi everyone!

We were finally able to go and see Graci. It took a little longer than we had thought because they had a little scare with her blood pressure dropping, but she is doing fine now. They had her covered with her cute blanket and she actually looked very good (considering). She's a little pale and puffy, but I think she looks better than last time. Right now she is still on a ventilator, and she's already communicated that she's not happy about that. She signed that she wanted a drink, and I told her we'd have to wait until the vent is out-- and I could see her fighting tears. She has several IV's in different places and four tubes coming out of her chest/abdomen. This was easier to see this time as we have gone through it before. I did ask her if she's hurting, and she shook her head, "no." She is resting well, though she is pretty aware of what's going on. She's barely opening her eyes, but she shakes my hand and tells me (by me guessing) what she wants-- which is usually to sing to her. Sadly, I forgot her CD's-- so we won't have those until morning. Jeremy was only able to be with Graci for 5 minutes before the combination of sickness, lack of sleep and stress made him feel like he was about to pass out. He headed home and hopefully he can get a good night's rest and come back refreshed and feeling better tomorrow.

It felt so good to have Graci communicating a little bit-- even if by nods and shakes of the head. It is SO NICE this time that she can understand English and have the comfort of having things explained to her.

Parents have to be out of the ICU from 7-8 for the nursing shift to change-- so that's why I'm here typing right now. It was hard to leave her because I could tell she wanted me to stay. I'll be so happy when she can move out of ICU and have her own room that has a bed for me so I don't have to leave her.

Taylor, Parker, Jesi and Elli-- I LOVE YOU!!! I told Graci that you were happy she was doing well and it seemed to make her happy. Thanks for being such good kids-- I miss you! I'm excited for Graci to get well enough that you can come and visit! (:

In closing, a scripture from Psalms:
"He healeth the broken hearted and bindeth up their wounds."
These words have been fulfilled today. (:

We've spoken with the surgeon

Graci is nearly done-- she is still in the OR because they are fixing an IV line, but she should be getting settled into the PICU shortly and we should be able to see her in about 30 minutes. (: Everything has gone well. She is stable and they were able to accomplish everything they wanted to do. They will, of course, be monitoring her very closely because of various risks, such as infection, bleeding, complications with the blood flow to the lungs, etc.

We are VERY HAPPY and relieved that she has come this far. As we've said many times, we appreciate every prayer offered in her behalf. Jeremy is still feeling under the weather, but has been told if he scrubs well and wears a mask he can come with me to see her. (: (: (:

This may be our last post for a few hours-- we'll see how things go in the PICU. Love you all!

--Christianne

4:10 update

We just spoke with the nurse and they are closing her up, putting in chest tubes, and making sure she is stable. Everything is still going well-- it is just meticulous work. Hopefully she will be done in an hour or so and we can speak with the surgeon to see his take on everything. I am almost ready to breathe a sigh of relief.

Have you ever tried to eat anything while your child has his chest cut open and ripped apart? Let me tell you, it's not an easy thing. You take a few bites, but can't escape the images in your mind of the sad state of your child. I had a very hard time choking down lunch... until I got to the most fabulous chocolate mousse pie-- yummy! I figured God must hae invented that just to bring some joy to this day. I was also able to giggle out loud from the latest entry from the most beautiful blog-- www.audreycaroline.blogspot.com. If you haven't checked this blog out, you should do it-- she is the most amazing writer and has literally thousands of hits every day-- no joke. Angie's from my favorite place-- Nashville, TN, and we've had some similar experiences that make me feel close to her. Her entry today was priceless, and I have to agree with her on the panties thing! See, now you're going to read it just to check out what I'm talking about. (: Another happy thing today--my dearest frined, Heather, just got her LOA for her little guy from China, which means they'll be travelling to get him in just a few weeks. They are the most beautiful family and I feel so blessed that Elli's adoption was part of what opened their hearts to their little Max-- such a cutie. www.heathermathenyfamily.blogspot.com

So see, there is always some sunshine in hard days... (:

3:15 update

They are all done with the work on her heart. They are now doing an echocardiogram to ensure that the blood flow is all correct. If everything looks good, they will close her up. If all is good, she should be done fairly soon. Thanks for all of your prayers. She has done very well!